Initial treatment includes patient education and general measures taken by the patient to prevent and treat attacks. Hi, all! #11. Re: Raynaud's Phenomena Personally, I do not think there is a link between HCM and Raynaud's. Oct 19, 2017. #8. Nipple blanching (turning white) after a feeding occurs when the blood flow to the nipple is limited or cut off. It also offers various skin benefits. Main article: Cardiovascular disorders. Nice to meet you all. Although symptoms vary from person to person, Raynaud's typically causes the affected body parts to turn white, then blue, in response to stress or exposure to cold. For Raynaud's Syndrome: “Been on Adalat for the winter period started off good but after 2 months my left leg and ankle swelled and itched like crazy felt like dozens of bees stinging my leg. Causes of secondary Raynaud's include: In the most severe Raynaud's disease cases, nerve surgery or chemical injections can be used. If you are interested, here is a website about Lyme, Raynaud's… Views: 33,603 Announcement: Posting Policy. Gingko Biloba is an herbal supplement that has antiplatelet activities, meaning that it may help to support normal blood flow. Raynaud’s is a condition that results in poor blood flow, typically to the hands and feet. Posted 11/4/2010 3:39 PM (GMT -6) I also took Nifedipine for Raynaud's and it caused my blood pressure to drop pretty severely... dizziness and partial/full loss of vision every time I stood up. My fingers and toes are most affected by it (sometimes my nose is as well). The Raynaud’s Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud’s Phenomenon. Raynaud’s Disease Sometimes medications are prescribed to help dilate blood vessels. Raynaud’s phenomenon is named after the French physician Maurice Raynaud who first described Raynaud’s phenomenon in a young woman in 1862. Emphasis on the think. #11. I notice stress is a trigger, but also sometimes it is the cold. An IBS community providing characteristics for diagnosis of symptoms and treatment, forums and chat rooms to talk about ibs, blogs, resource links, brochures, medical tests, book list, penpals, meetings, research studies and a list of medications. L-arginine Plus® is an ideal support treatment for this significant discomfort. suffering from pain, deformity and redness in my fingers and feet. I am on migraine preventative medication: a beta-blocker (metoprolol, 200mg) as well as a triptan (frovatriptan, 2.5mg) for migraine attacks. There may be as many as 10 million people with the condition in the UK. I am trying to make people aware of this illness, too… by J. F. (Facebook Fan) Reports may be affected by other conditions and/or medication side effects. But Raynaud’s can be caused by a wide variety of various conditions and diseases. The skin then changes color as blood flow is disrupted. Raynaud’s disease is an abnormal sensitivity to cold that causes tingling, discomfort, numbness and color changes in the fingers and/or toes. Systemic sclerosis and pregnancy. I am trying to make people aware of this illness, too… by J. F. (Facebook Fan) I have been struggling with a variety of symptoms for about 10 years now. Last reply 3 years ago. I have Raynaud's, and I live in Alaska, so basically am always cold! Forums. for the first time at the end of May. Furthermore, when trophic changes are present, they are limited to the distal skin of the digits. Raynaud’s phenomenon is a common condition. Raynaud's disease is a condition that affects blood flow to the extremities which include the fingers, toes, nose and ears when exposed to temperature changes or stress. The garlic is 200mg, the gingko is 3000mg . These vape juices contain the extract of jasmine flowers in them and this provides the user a great relief from different body pain. I found out that it was Chilblains. Also called Raynaud's phenomenon, this form is caused by an underlying problem. Last reply 3 years ago. The decreased blood flow is exacerbated by cold temperatures and can cause color changes and pain in the digits. The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. Board Tools. Discussion Forums; Site Map; Search for: Raynaud’s Support. I am a 21 year old sufferer of Raynaud's, Lupus SLE and another related connective tissue called Scleroderma. Raynaud’s phenomenon: also known as secondary Reynaud’s, is less common and is associated with an underlying disease, such as rheumatoid arthritis, systemic lupus erythematosus, scleroderma or arteriosclerosis. In addition to these symptoms, 2 other conditions—Raynaud's phenomenon and Sjögren's syndrome—also affect patients with scleroderma. When I touch or feel something cold, ie, a steering wheel on a winter day, ice cold water, or things in a freezer, my fingertips turn white and my hands … I must admit, from the website, he doesn’t seem very credible, but I’ve been reading that some people have success with his magnets. It’s quite severe. Because women may describe shooting, burning breast/nipple pain, this can be mistakenly diagnosed as thrush. The capusle of butchers broom+horse chestnut+vine leaves has 420, 240 & 140 respectively, which I got from Holland & Barratt. Exercise regularly to boost blood flow. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first. You may have to register before you can post: click the register link above to proceed. Sometimes medications are prescribed to help dilate blood vessels. Posted 3 years ago. From reviewing & testing warming products to keeping us up to date on the latest medical developments, I really appreciate it. Recent Forum Topics. The blood vessels (arteries) that feed the fingers and toes are very small. The next regular meeting of the Butler/Armstrong County Lupus Support Group will be at 7 p.m. Tuesday in the blue room of the Butler VA Hospital. We are here to improve awareness and understanding of these conditions, to support those affected, and ultimately, to find a cure. We are Scleroderma & Raynaud's UK (SRUK), the only UK Charity dedicated to improving the lives of people with Scleroderma and Raynaud's phenomenon. Raynaud's occurs in 3% to 5% of adults worldwide. Raynaud’s is not exactly a “disease,” but rather it is a symptom of other conditions that may be more serious. I found out that it was Chilblains. Blood vessels are constricted when you are having an attack. Jessica, Like GBS I had never heard of Raynaud’s Syndrome until Brandy was diagnosed with it. For many people, Raynaud's disease is merely an … That is, a patient with one diagnosed condition will commonly be found to have features of one or more other autoimmune diseases. Raynaud’s disease (or Raynaud’s phenomenon) is an exaggerated cold response. The body shuts down blood flow to the fingers, toes, or sometimes ears, nose, or nipples when the body is exposed to cold or stress that would not normally provoke a cold response. In people who have Raynaud’s, the small blood vessels in the extremities are over-sensitive to changes in temperature. Raynaud's syndrome. This results in small blood vessels in hand or feet clamping down, and fingers or toes turn blue or white, and then turn red when the blood vessels relax and the circulation is restored. Thank you for sharing all this info. 4. When the blood flow returns to my toes, they turn purple/blue. I hate exercise with a passion but unfortunately, it can not … Forums. Women with systemic sclerosis may find it harder to get pregnant and could have a slightly higher risk … I just make sure to wear gloves anytime the temp reaches below 60 degrees. Raynaud’s symptoms are often the first sign that the patient also has a connective tissue disease. May 9, 2013 By Frostie. 0. I was diagnosed with Raynaud's Syndrome in 1988 and later diagnosed with Multiple Sclerosis in 2004. Yes, I have Raynauds as well as FM. You can help by signing their petition addressed to the White House. Now - at 45 yrs it’s worse. With February statistically being the coldest month of the year it's no wonder SRUK choose this month for Raynaud's Awareness Month. Approximately 85% to 95% of scleroderma patients experience Raynaud's phenomenon. There’s lots of ways for us to help people and have them live their life with far fewer episodes of these white and blue fingers, toes, tips of nose, earlobe issues. Pelmear PL , Taylor W. J Occup Med, (11):1144-1149 1991. Raynaud’s attacks usually affect your fingers and toes. I took 2 of them daily as advised. "Since then, I have started attending University, studying Football Business and Media. And they're looking fairly normal for a Raynaud's thing - a greyish purple, to me, but it could vary due to colorblindness. Raynaud's … You can help by signing their petition addressed to the White House. Symptoms include Raynaud’s, GI issues, esophageal strictures, severe muscle/joint pains, nearly constant numbness in limbs, chronic migraines, psoriasis, and canker sores (I only get the canker sores during flare ups.) From reviewing & testing warming products to keeping us up to date on the latest medical developments, I really appreciate it. The prevalence in individuals over age 60 is 0.1–1%.1 Primary Raynaud’s is generally considered a benign condition and typical age of onset is from 15 to 30 years of age. Welcome. Search this Board. We launched on 31st March 2016. Celiac & Raynaud's: How These Autoimmune Diseases Go Together. She is on a low estrogen BCP and for the summer went off her Raynaud's medicine which is a blood thinner. Since GBS she too has been diagnosed with Raynauds. Hi everyone, I somehow stumbled into this forum about magnets. She has learned to manage the Raynauds by keeping her feet and hands warm. Primary Raynaud’s usually begins in your 20s or 30s. I also bought a pair of Raynaud's gloves from Theracare and personally, I didn't notice a difference to be honest. My fingers and toes are mostly affected but I've had instances where my nose and ears are bothered too. When I touch something really cold, it takes a long time for my hands to get warm again. Raynaud’s Disease. Read More ». I was just at Alex Chiu’s site looking at his products. All lupus patients and families are welcome. When your blood vessels narrow, your blood flow is reduced and this can lead to Raynaud’s attacks. The occurrence of Raynaud's phenomenon in hypothyroidism without thyroiditis and its prompt disappearance with thyroid replacement therapy demonstrate that decreased thyroid function per se is a cause of this vasospastic syndrome. The American Self-Help Clearinghouse is working to proclaim January as “National Support Group Awareness Month.”. Recent progress. By peter21217. Hi Everyone, I haven't posted in a long time. Scleroderma and Raynaud’s UK online community – a forum for people affected by Raynaud’s, or the associated health condition scleroderma, to share experiences. Epidemiology. Dependable irritable bowel syndrome (IBS) causes, symptoms, support and treatment for digestive health sufferers, family and friends since 1987. What Is Raynaud's Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. I notice stress is a trigger, but also sometimes it is the cold. Since 2014 I've very slowly developed a number of strange symptoms two of them being Raynaud's and Livedo Reticularis (mottled skin on my knees and thighs that is quite unsightly), but the mottled skin goes away when I am horizontal laying in bed, in the bathtub, or with my feet up on the couch. Mar 19, 2021. If you are interested, here is a website about Lyme, Raynaud… Raynaud’s Phenomenon Information Including Symptoms, Diagnosis, Treatment, Causes, Videos, Forums, and local community support. From both a diagnostic and a prognostic standpoint it is important that the physician be able to recognize Raynaud's disease both among men and among women and to distinguish it from other peripheral vascular diseases, especially from those in which there occurs a … Raynaud's phenomenon (RP) is a major cause of pain and disability in patients with autoimmune connective tissue diseases (CTDs), particularly systemic sclerosis (SSc). Then in 2005 I noticed purple feet when I got in bathtub. Support Forums > Fibromyalgia New Topic Reply ... You can have Raynaud's as a primary condition and also as a secondary. Nipple blanching is often, but not always, associated with pain. Scleroderma & Raynaud's UK (SRUK) is the new charity formed by the merger of the Raynaud's & Scleroderma Association (RSA) and the Scleroderma Society. Haha. What Is Raynaud's Raynaud’s (ray-NODES) is named for the French physician Maurice Raynaud, who first recognized the condition in 1862. One fingertip would go white in grocery store just walking thru freezer section. Same in the car, I try not to have the air blow on me. Nutrition and Raynaud’s Article Home › Forums › Coping Strategies › Nutrition and Raynaud’s Article This topic has 0 replies, 1 voice, and was last updated 35 minutes ago by Frostie . My hands were cold afterwards, but not much more so than my entire body. Autoimmune diseases, probably owing to a non-specific and poorly understood immunological response, often overlap or occur together. 0. Mar 19, 2021. When the blood flow returns to my toes, they turn purple/blue. If stress triggers your attacks, adopt a routine of stress-relieving … There’s lots of ways for us to help people and have them live their life with far fewer episodes of these white and blue fingers, toes, tips of nose, earlobe issues. Polymyositis (PM) is a rare, chronic, systemic autoimmune muscle disease that affects the skeletal muscles, those involved with voluntary movement, causing muscle weakness. Pathophysiologic mechanisms include temporary vasospasm and fixed digital artery obstruction. Search this Board. Raynaud's affects up to 10 million people in the UK yet SRUK's research reveals that only 4% are able to identify the symptoms of Raynaud's and worryingly only 10% of people on average who had Raynaud's symptoms would visit … Enquire about any associated symptoms such as migrainous headache, recent joint or muscle pains, rashes, symptoms of infection, weight loss, … I must admit, from the website, he doesn’t seem very credible, but I’ve been reading that some people have success with his magnets. Hi Everyone, I haven't posted in a long time. Cause of Tinnitus: Drugs barotrauma. All our articles and reviews are written independently by the Netmums editorial team. The Raynaud’s Association was contacted recently by Melissa Erickson, a reporter for Gannett newspapers. She was working on a story on people with cold hands and feet and the need for medical attention, with a focus on Raynaud’s. Gannett is […] Cold Cuts Winter 2021 Newsletter – Just Published! This is a psychologically induced overreaction to the autonomic system's normal response to cold by restricting circulation of blood to the extremities in order to converse heat. The Raynaud’s Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud’s Phenomenon. Read More ». Raynaud’s disease is when blood vessels in your fingers and toes temporarily overreact to low temperatures or stress. I don't feel the cold as much these days, my T takes my mind off everything, I go out and freeze myself skating for a couple of hours some days, I don't remember being this resilient and numb to half frozen limbs prior to T. Telis, Dec 14, 2014. Scleroderma & Raynaud's UK (SRUK) is dedicated to improving the lives of people affected by scleroderma and Raynaud's. Personally, the worst part of suffering from Raynaud's Syndrome was the pain in my joints and the swelling, which accompanied the sudden rush of blood when going from a cold to hot temperature. Primary Raynaud’s usually begins in your 20s or 30s. Scleroderma and Raynaud’s UK is the only charity dedicated to improving the lives of people affected by Scleroderma and Raynaud’s. When a Raynaud's attack occurs, the blood vessels in the hands and feet overreact to cold temperatures or stress. I just make sure to wear gloves anytime the temp reaches below 60 degrees. Duloxetine Sertraline Fluoxetine. (Arch Intern Med 140:832-833, 1980) Raynaud’s Phenomenon Signs and Symptoms. I would want to use them to help the Raynaud’s disease that effects my fingers and toes. Note: Product Reviews are the opinion of the reviewer based on personal experience and the input of our members. Marcus S , Weiner SR , Suzuki SM , Kwan … Check out the Summer 2013 Cold Cuts Newsletter. Celiac & Raynaud's: How These Autoimmune Diseases Go Together. Raynaud's phenomenon refers to the tendency for people's extremities, hands and feet to react excessively to cold and become whitish or even blue. As Raynauds progresses, it can cause gangrene to the affected digits. You may have to register before you can post: click the register link above to proceed. The capusle of butchers broom+horse chestnut+vine leaves has 420, 240 & 140 respectively, which I got from Holland & Barratt. People with scleroderma tend to develop it later in life and the intensity is A LOT more severe. We hope you find these products useful and that you will support these companies as they continually develop and refine products for the benefit of Raynaud’s sufferers. Raynaud's disease (RAY-noz) is a vascular disorder that affects blood flow to the extremities (the fingers, toes, nose and ears) when exposed to cold temperatures or in response to psychological stress. This organization keeps me informed of ways to manage my Raynaud’s. Raynaud’s Phenomenon Symptoms. That is, a patient with one diagnosed condition will commonly be found to have features of one or more other autoimmune diseases. This process leads to significant support when it comes to Raynaud’s syndrome or Raynaud’s disease. While there is no cure for Raynaud's, there are medical treatments and lifestyle changes that can help … Winter Fuel Payments for people with Raynaud's. It has been assumed that Raynaud's disease occurs very rarely among men as compared with its occurrence among women. Scleroderma and Raynaud’s UK online community – a forum for people affected by Raynaud’s, or the associated health condition scleroderma, to share experiences. It affects up to 20% of the adult population worldwide. I took 2 of them daily as advised. Support Forums. I also bought a pair of Raynaud's gloves from Theracare and personally, I didn't notice a difference to be honest. Then in 2005 I noticed purple feet when I got in bathtub. Welcome to This is MS, the leading forum for Multiple Sclerosis research and support. One fingertip would go white in grocery store just walking thru freezer section. Maybe for me, it is poor circulation. Although symptoms vary from person to person, Raynaud's typically causes the affected body parts to turn white, then blue, in response to stress or exposure to cold. Until GBS she was a healthy kid. I also have Sjogren's Syndrome. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures. To start viewing messages, select the forum … We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures. Raynauds is caused by an exaggerated vasospasm response generally to cold temperatures but sometimes even to vibration. Raynaud's syndrome (RS) is characterized by episodic digital ischemia induced by cold or emotional stress. We're a 501c3 non-profit organization providing support and education to the many sufferers of Raynaud's Phenomenon - an exaggerated sensitivity to cold temperatures. Raynaud’s Assn. Most often experienced in the hands, feet, fingers and toes, the condition causes your extremities to feel cold, often resulting in pain, discomfort and an unsettling purple or white colouring. ... Raynaud's Syndrome, Raynaud's Treatment Diet. Board Tools. #2. And particularly with secondary Raynaud’s phenomenon, if we can actually get a handle on what the underlying cause is, we can do a lot to make them better. Raynaud’s phenomenon is a common condition. I am on migraine preventative medication: a beta-blocker (metoprolol, 200mg) as well as a triptan (frovatriptan, 2.5mg) for migraine attacks. September 15, 2013 By Frostie. Note: Product Reviews are the opinion of the reviewer based on personal experience and the input of our members. Oct 19, 2017. News and information on research studies and trial recruitment opportunities. In addition to all that I daily took a multivitamin, which to be fair, is a lot of medicine to consume every day. I'm a 21 year old female, and I've had chronic/recurrent migraine for about 6 years, and Raynaud's (circulation problem in the extremities) for at least as long as that as well, but I can't remember exactly. Nice to meet you all. SRUK. Answer 1 of 9: I'm coming to Switzerland (dream trip!) INTRODUCTION — Raynaud phenomenon (RP) is an exaggerated vascular response to cold temperature or to emotional stress, which is manifested clinically by sharply demarcated color changes of the distal skin of the digits as well as toes, nose, and earlobes. But Raynaud’s can be caused by a wide variety of various conditions and diseases. Now - at 45 yrs it’s worse. Raynaud's phenomenon (syndrome) is now felt to be common, affecting up to 20% of women of childbearing age. Raynaud's disease, also known as Raynaud's syndrome and Raynaud's phenomenon, is the result of over-sensitive blood vessels in the extremities of the body. Vaping this flavor can help the person to stay calm and help him to fight against anxiety. Dependable irritable bowel syndrome (IBS) causes, symptoms, support and treatment for digestive health sufferers, family and friends since 1987. Sclero Forums (MAIN) Raynaud's help SCLERO.ORG is Retiring on April 24th 2021. Cold Cuts Spring 2021 Newsletter – Just Published! Posted 11/4/2010 3:39 PM (GMT -6) I also took Nifedipine for Raynaud's and it caused my blood pressure to drop pretty severely... dizziness and partial/full loss of vision every time I stood up. Haha. raynaud's and MS. Results are reported from data collected at Baseline/Week 0, Week 4, Week 5, and Week 9 visits. News and information on research studies and trial recruitment opportunities. Had Raynauds nigh on 40 years. This article contains affiliate links, which means we may earn a small amount of money if a reader clicks through and makes a purchase. Support. I don't feel the cold as much these days, my T takes my mind off everything, I go out and freeze myself skating for a couple of hours some days, I don't remember being this resilient and numb to half frozen limbs prior to T. Telis, Dec 14, 2014. This organization keeps me informed of ways to manage my Raynaud’s. I was just at Alex Chiu’s site looking at his products. Although secondary Raynaud's is less common than the primary form, it tends to be more serious. TOS and Raynaud's Syndrome Related? Community-based surveys estimate Raynaud’s may be present in 5–20% of women and in 4–14% of men. A study in the journal Circulation suggests Viagra could help treat a circulatory disorder called Raynaud's phenomenon, which affects about 5% of the population. This Is MS Multiple Sclerosis Knowledge & Support Community. This is not associated with any other conditions. I like the cold dark snowy days now with T for some reason. Raynaud's Disease Support Group. This forum is for reporting technical problems, access to the Forum User's Agreement and Forum User's Manual. @WeAreSRUK. Using a range of therapies to help patients. For many people, Raynaud's disease is merely an intermittent but painful inconvenience. Threads in Board : Raynaud's Syndrome. SERVICES DIRECTORY Helpline: 0800 311 2756 Our free Helpline is available to support anyone affected by Scleroderma and Raynaud’s. I like the cold dark snowy days now with T for some reason. Forums. Qualifying for Disability Benefits with Raynaud's Disease. An attack can last a few minutes to more than an hour. I would want to use them to help the Raynaud’s disease that effects my fingers and toes. An attack can last a few minutes to more than an hour. Raynaud’s phenomenon is classified as either primary, known as Raynaud’s disease, or secondary, known as Raynaud’s syndrome. Most mild cases of Raynaud’s disease require only self-treatment to reduce the frequency and severity of attacks (such as making sure to keep the extremities warm). Sometimes medications are prescribed to help dilate blood vessels. In the most severe Raynaud’s disease cases, nerve surgery or chemical injections can be used.
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